One Year Old!

Wow, it is hard to believe on June 26th Peyton turned one year! Peyton had an awsome party with lots of family and freinds. Water activies and pony rides were the big hit. Here is a picture that we had taken for his one year old pictures.

An update on Peyton's health. He seems to be doing really well and out growing a lot of problems that they thought were just related to prematurity. He still has acid reflux issues and throws up a lot but they also thought this just needed time, they said hopefully by 18 months he should out grow this too. Peyton saw the developmental doctor about two weeks ago and is a little behind on his montor skills but still think is okay. However, his speech does seem to be more significantly behind. We are just waiting and working with Peyton ourselves to see if it comes around. Peyton is still small for his age. He weights 20 pounds and 12 oz. and is about 27 inches. This puts him at about the 5% for his age on the growth chart. One of the problems is because Peyton will only eat certain foods and textures, he has a little bit of a texture issue and also still is not taking a sippy cup. We are working with the occupational therapist to hopefully resolve these issues, he also see the early childhood speacialist twice a month as well to stay on top of things.

Thank you for the continued prayers. As you can tell they have definitly worked, Peyton has comes so farr with so few problems now. Sorry I have not keep up the blog very well but those of you who have children know that once they start crawling and getting into everything it definitly becomes a full time job. I will try to at least every other month post a picture and tell you of his success. Again thank you for the thoughts and prayers. As I am able to I will post more pictures from his birthday of the cake and such.

Good News!!!!!

Well, Peyton was 7 months old on January 26. Hard to believe it has already been that long and they he has already made it so farr. He seems to be doing very well these days, is happy and smilling a lot.

The news everyone has been waiting for, Peyton's rickets has now resolve itself in the xrays, so his bones seem to be in good shape now. Also, the excessive calcium in his urine has also seem to resolve itself, therefore there is not as much concern about his kidneys getting hurt. Lastley, even more good news we just found out, the Dent's disease DNA test we were waiting on was also negative, yah! It seems as though the NICU doctors and everything you hear about premies is correct, they just have to grow out of it. We all know though that this was definitly a miracle from God, just as his Peyton's life is. He still seems to be having acid reflux issues, and throwing up often. The G.I. doctor also said since Peyton was a preemie that this would take longer than normally born babies to grow out of, about 15 months of age he thinks. We can definitly deal with this as long as the medicine seems to work and not make him hurt during these episodes.
Peyton has come a long way. Two weeks ago when he was weighted last, he weighted 14 pounds 3 ounces and was 24 & 1/2 inches long. He still is not on the growth chart for his age but he is definitly catching up. Peyton can now roll from his stomach to his back both ways by himself and can roll from his back to his stomach with a small amount of help. He can also sit up pretty well just sometimes seems to fall over. He stands up in our laps very well, and we are not sure if he might walk before he crawls!

Peyton is getting dedicated at church tomorrow and we all know his life belong to God! Thank you all for the many prayers, they are blessing and definitly have helped. Please continue to pray for Peyton as he continues to grow and become stronger internally as well as externally. We will continue to up date you guys as we learn anything more. We love ya'll!

Merry Christmas!

Hello Everyone-

Sorry it has been so long again since we have updated you guys. First, we hope everyone had a Merry Christmas and Happy New Year! Here are our Christmas pictures.....

Once again we have been to several doctors since the last update. First, the good news he saw the Cardiologist and the doctor does not think he has a hole in his heart. He thinks that was just something due to him being born prematurely and has cleared him until his second birthday and at that point will do another ecocardiogram to verify it is closed and then release him for good. We also saw the genetisist and endocrinologist again trying to look into the rickets more. Peyton is not deficint in vitamin D nor in Calcium therefore not consistent with rickets. He is however excreting a lot of calcium in his urine and they are affriad that eventually this could cause an issue with his Kidneys. With this in mind they have now tested him for Dents disease, which is a DNA test and we have to wait about 8 weeks to get the results back and it has now been about 4 weeks. This would explain the rickets in the bones and the calcium in the urine. They said it was like the bones telling the kidneys to get ride of a lot of the calcium. There is also another possiblity called Janson's but there is not a test for it. With either one of these there is not an exact cure, however they did say they would be able to possibly put him on medication to help from damaging the kidneys. The genetics doctor he is seeing, Dr. Lee at Texas Children's is head of the department there and over the research department as well, seems to really be good. He did not want to go into anymore detail about either disease until we got test back. As soon as we hear something there and figure out what's going on we will let you know.

Also last week Peyton went for his 6 month check up and shots. He now weights 13 pounds 9 ounces and is 23 and 1/2 inches long. The doctor said he was growing very well but still had a lot of catch up to do. Peyton is holding his head up very well and sitting up with a little assistants, he has started rolling over and smiles and laughs all the time. He is still continuing to recieve the RSV sentigen injections every month.

Thanks for all the prayers and support, please continue to keep him in your prayers and pray the doctors are wrong and the rickets issue is just due to his prematurity and he will get through this stage. We will definitly keep you updated as we get information. Again thanks and we love ya'll.

No Results

Sorry it has been so long since the last update. We have been going to lots of doctor appointments and just buisy with it being holiday season.

Since the last update we have seen a a few doctors. First, Peyton was able to finally be circumsized. Let me be the first to tell you, if you don't have it done at the hospital when they are still too young to know what's going on it is horrible. He was perfectly fine when we got him back then about 2 minutes later there was a horrifying look and he screamed like to other scream. Since then when he wakes up he gets really scared if he does not see someone he recognizes. Things did go well though. Also the genetist did not find anything wrong with Peyton genetically, praise God. However, they did see some spots on his Renal Ultrasound indicating possible kidney stones, so they referred him to the renal specialist. Two weeks ago now, we saw the renal specialist and he confired they were NOT kidney stones, merley calcium spots that should go away over time. The doctors thought maybe Peyton's calcium extrection in his urine was a possible reason to his having rickets. The doctor does not have the full results back on Peyton yet but says there is not a renal issues contriubuting to his rickets. So he is sending us back to the Endocrinologist. Hopefully one day we will have the answer to why he has rickets and what can be done to correct it. They all just keep saying they think it might just be prematurity and if that's the case it should correct itself over time. Let's hope for that. In the next two weeks Peyton will see the Endocrin, the Genetisist and the Cardiologist since they thought they may have seen on the NICU a small hole in his heart but Peyton was too small to really be able to tell. He did get his second RSV/sentigen injection last week as well. We will keep you updated as we get results.

Peyton is now 5 months old as of yesterday and we thank GOD for his growth and giving him to us for 5 months! Thank you all for the continued prayers, we love ya'll.

Happy Halloween!

As you could guess this is Peyton's first Halloween. No he couldn't go trick or treating for the risk of catching something and getting sick. So we took Peyton to his grandparents houses and trick or treated. We thought we would share our cute little pumpkin with you.

Happy 4 Months!

October 26th Peyton turned 4 months old! Yes, I know it is very hard to believe, it seems just like yesterday he was in the hopsital. Praise God he has now been home for 2 months!

On his birthday he saw the Pediatric surgeon whom confirmed it is now time for Peyton to be circumsized. If the doctor waits much longer then they will have to use anestisia and he wants to just use a local since we don't know everything that is going on with Peyton right now. So he is set to have surgery this coming Wednesday, November 4th. Please pray that everything goes well and he has know complications as this is considered a surgery now since he is 4 months old. Some of you may be wondering why it has not been done yet, when he was in the NICU they checked Peyton and said he was too swollen to be able to safly do it. Apparently Peyton still is a little swollen so there is a small risk he will bleed and need stitches but obviously there is a greater risk to wait and then have to put him under anestitia. Again please pray for Peyton during this.

Also this past Monday we saw the Pediatrician for his 4 month check-up. He now weights 9lbs and 13oz. and is 21 and 1/2 inches long, he is definitly growing as you can see from the pictures. He was such a happy baby, cooing and playing until they gave him his shots. He cried and then went to sleep.

As if we weren't having enough fun with doctors and hsopitals Patrick, Peyton's dad broke his nose and had to have surgery this past Wednesday. Everything went well and his nose seems to be healing just fine. Please keep him too in your prayers as he is still in a lot of pain and constantly has a headache.

This past Thursday Peyton saw the genetistics. The doctor was very thorogh into Peyton's background going all the way back to his greatgrandparents. No we do not have any anwsers yet, however he did send Peyton for a renal ultrasound looking for possible kidney stones, as well as blood work, urninalysis, and about 20 more xrays looking into the rickets more. The doctor hoped he would have all the results back this next week and maybe some answers to what is going on.

Please continue to pray for Peyton and that hopefully there is nothing wrong and they are just being over cautious since what he has come through. Again thank you for your prayers and we will keep you updated as we hope to get results and as Peyton has he surgery. We love ya'll!

Doctors appointments

Well we have been to several doctors appointments since last update. Peyton is doing very well for where he came from 3 and a half months ago.

About 3 weeks ago now we went to have xrays taken to show how his rickets was doing. It showed his rickets was very active and the pediatrician referred us to an Endocrinologist. We saw the Endocrinologist about a week ago now and she did confirm his rickets and showed me nodguels on his bones and where his joints could not absorb the calcium. The doctor put him on a new medication called calcitrol to try and get more vitamin D and Calcium in him. I did ask her if the damage was already done and she said if there was no other underlying problems then hopefully we could get this reversed. She had us go get blood work and a urine specimin done that day at Texas Children's where she is and they were great with him. We do not have the results yet however she did refer us to a genetic specialist to make sure there was nothing possible in his background that would cause rickets. We are not able to get into him until December. We will update will update you when this happens. The doctor did mention that it was possible that the TPN fluids he recieved in the NICU could cause the rickets as well however, we can not be upset with this as they were doing there job as saving his life.

Last Wednesday we saw an Early Childhood Intervention worker and Physical Therapist to evaluate Peyton's developmental progress. Things went very well, he almost scored out of the program. They are allowed to correct for him being premature up tp 2 months. He scored between a 2 and 3 month old developmentally, yea! He is less than 3 % weight and height even for a 2 month old, so needless to say he is still very small for his age but that's expected however they did say he was porportionate. The only reason he qualified for this program is because of his rickets and the possibility of needing help with that.

Yesterday we went for a recheck to the pulmonologist and everything checked out very well. Peyton finally gets to get rid of his heart and apnea monitor that he has been having to wear. We will finally get to move about our house like a normal baby not attached to anything! This is a major praise.

Next week we go to the pediatrician for his 4 month check-up, yes that's right 4 months thank you God! Also we will be seeing the pedi-surgreon as well to see if it's possible to get him circumsized yet.

Thank you for all your prayers and please continue to pray for him and us. God has done a mighty work in this little boy and on our hearts!