Saturday, August 21, 2010

One Year Old!

Wow, it is hard to believe on June 26th Peyton turned one year! Peyton had an awsome party with lots of family and freinds. Water activies and pony rides were the big hit. Here is a picture that we had taken for his one year old pictures.

An update on Peyton's health. He seems to be doing really well and out growing a lot of problems that they thought were just related to prematurity. He still has acid reflux issues and throws up a lot but they also thought this just needed time, they said hopefully by 18 months he should out grow this too. Peyton saw the developmental doctor about two weeks ago and is a little behind on his montor skills but still think is okay. However, his speech does seem to be more significantly behind. We are just waiting and working with Peyton ourselves to see if it comes around. Peyton is still small for his age. He weights 20 pounds and 12 oz. and is about 27 inches. This puts him at about the 5% for his age on the growth chart. One of the problems is because Peyton will only eat certain foods and textures, he has a little bit of a texture issue and also still is not taking a sippy cup. We are working with the occupational therapist to hopefully resolve these issues, he also see the early childhood speacialist twice a month as well to stay on top of things.

Thank you for the continued prayers. As you can tell they have definitly worked, Peyton has comes so farr with so few problems now. Sorry I have not keep up the blog very well but those of you who have children know that once they start crawling and getting into everything it definitly becomes a full time job. I will try to at least every other month post a picture and tell you of his success. Again thank you for the thoughts and prayers. As I am able to I will post more pictures from his birthday of the cake and such.

Saturday, February 6, 2010

Good News!!!!!

Well, Peyton was 7 months old on January 26. Hard to believe it has already been that long and they he has already made it so farr. He seems to be doing very well these days, is happy and smilling a lot.

The news everyone has been waiting for, Peyton's rickets has now resolve itself in the xrays, so his bones seem to be in good shape now. Also, the excessive calcium in his urine has also seem to resolve itself, therefore there is not as much concern about his kidneys getting hurt. Lastley, even more good news we just found out, the Dent's disease DNA test we were waiting on was also negative, yah! It seems as though the NICU doctors and everything you hear about premies is correct, they just have to grow out of it. We all know though that this was definitly a miracle from God, just as his Peyton's life is. He still seems to be having acid reflux issues, and throwing up often. The G.I. doctor also said since Peyton was a preemie that this would take longer than normally born babies to grow out of, about 15 months of age he thinks. We can definitly deal with this as long as the medicine seems to work and not make him hurt during these episodes.
Peyton has come a long way. Two weeks ago when he was weighted last, he weighted 14 pounds 3 ounces and was 24 & 1/2 inches long. He still is not on the growth chart for his age but he is definitly catching up. Peyton can now roll from his stomach to his back both ways by himself and can roll from his back to his stomach with a small amount of help. He can also sit up pretty well just sometimes seems to fall over. He stands up in our laps very well, and we are not sure if he might walk before he crawls!

Peyton is getting dedicated at church tomorrow and we all know his life belong to God! Thank you all for the many prayers, they are blessing and definitly have helped. Please continue to pray for Peyton as he continues to grow and become stronger internally as well as externally. We will continue to up date you guys as we learn anything more. We love ya'll!

Friday, January 8, 2010

Merry Christmas!

Hello Everyone-


Sorry it has been so long again since we have updated you guys. First, we hope everyone had a Merry Christmas and Happy New Year! Here are our Christmas pictures.....
Once again we have been to several doctors since the last update. First, the good news he saw the Cardiologist and the doctor does not think he has a hole in his heart. He thinks that was just something due to him being born prematurely and has cleared him until his second birthday and at that point will do another ecocardiogram to verify it is closed and then release him for good. We also saw the genetisist and endocrinologist again trying to look into the rickets more. Peyton is not deficint in vitamin D nor in Calcium therefore not consistent with rickets. He is however excreting a lot of calcium in his urine and they are affriad that eventually this could cause an issue with his Kidneys. With this in mind they have now tested him for Dents disease, which is a DNA test and we have to wait about 8 weeks to get the results back and it has now been about 4 weeks. This would explain the rickets in the bones and the calcium in the urine. They said it was like the bones telling the kidneys to get ride of a lot of the calcium. There is also another possiblity called Janson's but there is not a test for it. With either one of these there is not an exact cure, however they did say they would be able to possibly put him on medication to help from damaging the kidneys. The genetics doctor he is seeing, Dr. Lee at Texas Children's is head of the department there and over the research department as well, seems to really be good. He did not want to go into anymore detail about either disease until we got test back. As soon as we hear something there and figure out what's going on we will let you know.
Also last week Peyton went for his 6 month check up and shots. He now weights 13 pounds 9 ounces and is 23 and 1/2 inches long. The doctor said he was growing very well but still had a lot of catch up to do. Peyton is holding his head up very well and sitting up with a little assistants, he has started rolling over and smiles and laughs all the time. He is still continuing to recieve the RSV sentigen injections every month.
Thanks for all the prayers and support, please continue to keep him in your prayers and pray the doctors are wrong and the rickets issue is just due to his prematurity and he will get through this stage. We will definitly keep you updated as we get information. Again thanks and we love ya'll.