Monday, August 31, 2009

Weekend Updates

Peyton now weighs 5lbs 6.2oz.

He had a sleep study yesterday and all indications are that it went very well. We are still awaiting official results from that and should get them back in the next 24 hours. He did well throughout the weekend and seems to be very happy as long as he gets fed when he wants to.

He will have some blood work done today to determine if his blood is regenerating itself, if his Calcium and Phosphorus is normal, and to see if the rest of his electrolytes are in the normal range. Please pray that everything goes well with this because this could be the determining factor on whether he comes home in the next few days or not. He will also have a car seat study done today to see if he can handle riding in a car seat while maintaining control of his breathing and heart rate. This is done because he is to small to fit in a car seat normally and his chin may tend to drop and thus cut off his air supply a little, the nurses have ways to pack blanket rolls in the seats to help limit this effect.

Thank you to everyone who continues to pray for him and please continue to do so. God is giving him strength and watching over him. Thanks and God bless.

Patrick

Friday, August 28, 2009

Update




Peyton now weighs 5lbs 3.3 oz.

He is doing well with the new medication the gave him and he seems to be able to eat a little more now that his stomach is digesting things a little faster.

The doctors are a little concerned with his Calcium and Phosphorus levels still being low. The levels are coming up just not to the amount they are wanting them to be. The doctor is going to have a meeting with the nutritionist today to discuss other options in regards to supplementation for the Calcium and Phosphorus.

He is also going to have to have another sleep study done in the next couple of days and may have to have another blood transfusion if he does not start producing red blood cells at a faster rate. the doctor said he is producing the red blood cells but they are taking more blood out to test him than his little body can produce.

Please continue to pray for Peyton and ask God to watch over him as he continues to grow.

Patrick

Thursday, August 27, 2009

More Medicine

Peyton now weighs 5lbs 1.2oz. He is starting to get his appetite back after a couple of days of not wanting to eat.

The doctor put him on a new medicine yesterday to try and relieve some of his reflux issues. It is supposed to help with the motility of the intestinal tract and empty his stomach out a little faster to prevent the food from backing up into the windpipe. So far it looks like it is helping because he is eating faster and seems to want more than his minimum amount of food.

He is having some blood work done today to determine if his Phosphous levels are coming back up or if they need to add more formula to help with that. The tests will also determine if he will need a blood transfusion again to increase the number of red blood cells which will help in the transportation of O2 in his body. The doctors think he is doing good making his own red blood cells but the amount is still a little low and this may be contributing to some of the breathing issues.

All the problems he is having are fairly normal for premeis and should be resolved with time and growth according to the doctors.

Please continue to pray for Peyton and that God continue to watch over him during this time.

Patrick

Wednesday, August 26, 2009

Minor Setbacks

Peyton now weighs 5lbs 0.2oz.

His eye exam yesterday went well and the doctor said that his retina is nearly fully developed and he has a good chance of having 20/20 vision. His sleep study showed inconclusive results. They say he does not need full time O2 but it is not going to hurt him to have it. The study also showed that his acid reflux is worse than originally thought, so they are going to try some different medications and formula to try and correct the problem. He also had his immunizations yesterday and everything seems to be ok there.

The setbacks are that he had an A&B spell yesterday morning and this morning. In order for him to come home he has to have 5 consecutive days without any episodes. The doctors and nurses all seem to think that these A&Bs are related to his reflux, they think that if they fix that he should be ok.

Thank you all for all your prayers and support. Please continue to pray that God watch over him and make him stronger with each passing day.

Patrick

Tuesday, August 25, 2009

Update

Peyton had his sleep study late last night and into this morning. No official results yet but the nurse said he did well.

The only issue that is keeping him from coming home now is his Phosphorus levels are to low. They started adding Enfamil to his milk to raise his Calcium and Vitamin D levels last week, and now they are going to add more to get his Phosphorus level up. This is a concern because he is showing early signs of Rickets which is a softening of the bones which can lead to fractures. The doctor said there is nothing to worry about and he will eventually out grow it but for now they are going to continue to monitor him until they get his Phosphorus back up.

He is also going to have another eye exam today to test for ROP. If this test goes well they probably won't check him again for about a month. He will also probably undergo a car seat study sometime today to see if he can hold his head up enough to breathe and ride in a car seat. Also his immunizations are going to be today and have to be given over a 24 hour period. Please pray that all these tests and procedures go well and that God continue to watch over him.

Thanks to everyone who continue to keep him in your thoughts and prayers.

Patrick

Monday, August 24, 2009

Update from the Weekend

Peyton now weighs 4lbs 13oz and is 17.25in long.

He is now able to have full breast milk feedings but they are adding a little formula to his milk to help with calorie intake and calcium consumption. He is able to eat as much as he wants as long as he finishes 40mls and he is doing a great job of that.

Peyton should have his sleep study today to determine if he needs O2 at home or not. Tomorrow he should get his immunizations (has to be given over 24hr period) and he will get another eye exam. The doctors and nurses keep telling us he is doing so good, which is very reassuring.

He had a hearing test on Friday which went well and they said he has no hearing problems.

Hopefully, God willing, Peyton will do very well on his sleep study and have no ill effects from the immunizations and he may get to come home soon.

Sorry for the short post but he is doing well. Please continue to pray that God watch over him and protect him. Thanks to everyone who continue to think of Peyton during this time.

Patrick

Friday, August 21, 2009

No More Tubes or Incubator









Peyton now weighs 4lbs 10.2oz, again. He is putting back on the weight that he lost when he got on the diuretic.




He is now in an open crib (the same ones you see in newborn nurseries) and he got his feeding tube out. They also are trying him without oxygen again, so he has no more tubes or tape on his face. This is very exciting since it is the first time we have ween him without anything on his face.



They are letting him eat as much as he can stand every 3 hours as long as he finishes a minimum of 40+ mls. He finished 55 mls yesterday morning but then spit up for the first time so we think that his capacity is probably closer to 50 mls.



He will get his immunizations today and possibly get circumcised as well. They are doing that now so he has the weekend to heal before they run anymore tests next week.



Please continue to pray for him and that God may watch over him and protect him. We really want to thank everyone who continues to pray for his health and please continue to do so.



Patrick

Thursday, August 20, 2009

Good News

All of Peyton's tests have come back favorably.

He now weighs 4lbs 8.8oz, so he lot a little bit of weight the last 2 days due to the diuretic. The doctor told us this might happen since he is expelling excess fluid in his body.

He is down to 25% on his O2 and they are going to continue to ween him down on that today. He is not in an open air crib yet but could be moved to one today.

He is feeding on all bottles now and they are allowing him to eat as much as he can stand as long as he gets a minimum of 40mls. Yesterday he finished at least 45mls every feeding so he is doing well with that. The only thing that is keeping him from getting the feeding tube out right now is his Vitamins and medicine. However yesterday they ruled out the possibility of him needing anymore antibiotics so he will most likely come off the feeding tube today.

It has been 2 days since his last A&B spell, which is important because it has to be 5-7 days straight without incident before they will let him come home.

Thanks to everyone who continue to pray for him and please continue to do so. He is proof that pray works and he still needs all the help and support he can get.

Patrick

Wednesday, August 19, 2009

More Tests


Peyton had his developmental assessment yesterday afternoon and the doctor said that he is doing very well and right where he needs to be in terms of his growth.

He is now getting to have 8 bottles a day (full bottle feeding, no more tube) but they left the feeding tube in just in case he needs medication. 2 of his bottles now are Alaina's breast milk because they want to see if he has out grown his early allergy. Since he is getting the diuretic they are having to include some potassium into his food because he is urinating so much he is having trouble maintaining those levels.

He also had his ECO yesterday but there are no official results back on that at this time. We will probably get additional information on that around 5pm today.

They have also started weening him down on his O2 and everything seems to be going good on that for now.

He will have his VCUG (Dye Test) today to make sure everything is flowing out of the body and not backing up into his kidneys. Please pray that everything goes well with this test and that the ECO results come back favorable.

Please continue to pray that God watches over him and protects him. Thanks to all who continue to pray for him and think of us at this difficult time.

Patrick

Tuesday, August 18, 2009

Almost out of the Incubator

Peyton is now down to 28°C on his incubator and up to 7 bottle feedings per day. So he should be moved into an open crib in the next 1-3 days.

He now weighs in at 4lbs 10.1oz so he has almost gained 3lbs total.

Yesterdays tests all came back ok. His brain scan showed a little improvement from last time which is good and the doctor said there is nothing to be concerned with on that. His Chest X-ray came back a little fuzzy but they said his heart and lungs are developed. He is going to get a low dose diuretic the next few days to reduce the amount of fluid in his chest cavity to see if he really needs O2 full time or just during feeds.

He is supposed to have his ECO test today and the child life development therapist is going to be doing an assessment on him as well. Please pray that everything goes well during these tests because they are the ones that determine how long it will be before he comes home and how much additional support he is going to need when he gets home.

Please continue to pray for him to get stronger and healthier and that God will continue to watch over him. Thanks to everyone for thinking of Peyton during this time and please continue to do so.

Patrick

Monday, August 17, 2009

Tests

Peyton now weighs 4lbs 9.5oz and is 17in long.

He had a follow up head ultrasound today to check for any bleeding in his brain. So far no official results back on that but I will keep everyone informed. He also had a chest X-ray and will have an ecocardiogram later today to check and see if everything in his heart and lungs are developing properly and to make sure there are no complications. Please pray that all these go smoothly and that he continues to get stronger with each passing day. He will also have the dye test and the developmental procedure done later this week so lets hope everthing is in order there.

Peyton is now up to 5 bottles a day and they have him at 28.5°C on his isolette. After he gets to 6-8 bottles and 28°C they are going to put him in an open crib and he will be a little more free.

He is getting a little spoiled now according to the nurses because he is getting used to being held after his feedings and the nurses do not usually do that like we do. So he cries when they tube feed or bottle feed him and do not hold him for at least 15min afterward.

Thanks to everyone who continue to pray for him and please continue to ask God to watch over him and continue to make him healthy. Thanks and God Bless.

Patrick

Friday, August 14, 2009

Good News

Peyton is doing much better since they put him back on oxygen. He is keeping his O2 stats where they want them and he seems to be getting some of his energy back.

They are upping his feedings to 4 times daily at 43mls (30mls = 1 oz). He now weighs in at 4lbs 7.1 oz. The nurses have turned his isolette down to 29° and he is doing very well regulating his body temperature so he may be coming down to 28° an time now.

Prayers needed for next week, as he will have multiple test done to determine how healthy he is and how much support he is going to need when they do decide to send him home.
He will undergo a "dye" test where they are going to inject dye into his bladder and make sure everything runs out of the body not backwards into the kidneys. Then he will undergo an MRI of his heart and lungs to double check if everything is full developed and functioning properly. He is also going to get his 2 month immunizations.

We really appreciate the support and please continue to pray for him. Ask God to watch over him and the medical team to allow him to continue to grow healthy and strong.

Patrick

Thursday, August 13, 2009

Thursday News

Peyton had a couple of Apnea/Bradycardia episodes last night. The doctor said that this may be due to the fact that he is having to work to hard to keep his O2 saturation level up. This is also the reason that they said he has been acting kind of tired lately since his O2 stats seem to be lower during the times when he is off oxygen then during feedings when they are at 100%. She thinks that maybe they were to aggressive in weening him off of his oxygen, so they are going to put him back on it full time to see if that will make an improvment.

He is still getting 3 bottles daily and he is still doing very good on those so maybe in the next couple of days he will get an increase in food levels or another bottle added to his routine.

Over the last week or so he has begun to smile quite often while his is out of his isolette and we are holding him. So we are very happy to see him doing that.

He weighs 4lbs 5.3oz, so he is gaining weight and beginning to outgrow some of his little clothes that he has gotten.

Thanks to all who continue to pray for him and please continue to do so and ask God to continue to watch over him.

Patrick

Pictures




Wednesday, August 12, 2009

Good News

Peyton's eye exam yesterday was negative for ROP. He will have another test in 2 weeks and if that is negative the risk of him developing the disease is very low. Thanks to everyone for the prayers, he is living proof that prayer works.

The doctor increased his feeding to 38mls from 36mls. He is still tolerating all his feedings and may get increased to 4 bottle feedings per day very soon. Last night he weighed in at 4lbs 3.8oz.

The nurse last night decreased his isolette temperature down to 29.5°C so only 1.5° to go before he may be able to be in an open crib.

The doctors also ordered the portable apnea monitor and portable oxgen for him yesterday. This is a sign that they may be getting ready to send him home in a few weeks. They said that ordering the equipment is precautionary and he may or may not need it by the time he goes home.

I want to thank everyone for their continued support through this difficult time and ask that we continue to pray for him and ask GOd to watch over him.

Patrick

Tuesday, August 11, 2009

Prayers Needed

Peyton will have his second eye exam today before 12 noon. They are going to see if he is developing Retinopothy of Prematurity, which is an abnormal growth or lack of blood vessels in the retina. Please pray for everything to go well and that the outcome be favorable.

He also had his upper G.I. test yesterday afternoon and he does have a significant amount of acid reflux. The doctors have started him on Prevacid to stop the reflux and hopefully that will stop his A & B issues after feedings. They said he will grow out of this issue and it is nothing to worry about it is perfectly normal. He will probably have to be on this medication until he comes home and about 2 months after.

Last night when we tried feeding him at 5 pm he was very tired and did not seem interested in his bottle so he only ate 30 mls from the bottle and they tube fed him the other 7. The doctor attributed this to the fact that he had a big day and was probably very tired from the G.I. test. He did however finish his bottle at 2 am this morning in his usual 9 minutes so that is a good sign.

Again please pray for Peyton today during his eye exam and help him continue to endure all the test that are needed to ensure he comes home healthy.

Thanks to everyone who continues to think of him and pray for him during this time.

Patrick

Monday, August 10, 2009

Please Pray

Peyton will have an upper G.I. test today to see if he is having acid reflux. The doctor thinks this is what is causing him to have Apnea & Bradycardia spells about 15-45 minutes after feeding. The test will just be him drinking barium with his usual formula and the technician doing an X-Ray to see if the food is coming back up the throat once he is finished. So please pray that everything goes smoothly with the test and the outcome is favorable.

He is now weighing 4lbs 2.2oz and measuring in at 16.5in.

Tomorrow will also be a very big day because he has his 2nd eye exam to see if he is develoing ROP which is a problem with the retinal blood vessels. So please pray that eveything goes well with that test as well.

We are so greatful that everyone continues to pray for God to watch over him and give him the strength to endure and battle through these though times, and we just ask that everyone continue to do so. Thank you so much for keeping us in your thoughts and prayers.

Patrick

Thursday, August 6, 2009

Roller Coaster Ride


This is what Alaina and Pat refer to as the roller coaster wave. This is from about a week ago, so I guess he was five weeks old.

Peyton is doing really well for being a preemie. He did good on his bottle again. They are considering taking him off of oxygen today (I think!). The only time he will have oxygen is when he is eating because it is more likely for him to need it.

He is still wearing clothes and is doing a fairly good job regulating his body temp.

They are not sure if Peyton is actually allergic to Alaina's milk or not and plan to reintroduce milk sometime soon.

They will restest Peyton's eyesight next week.

(Sorry this post is kind of scatter-brained, but with two little ones and being preggo, I can't think properly!!!)

Wednesday, August 5, 2009

Good News ..... For the most part.


Peyton now weighs 3lbs 12.3oz so he has almost gained 2 whole lbs.


He got to drink out of the bottle again today and he again finished the entire thing. But when Alaina was trying to burp him he had a couple of Bradycardia (heartrate drops below 100 bpm) spells. The doctor took it under advisement and is going to keep an eye on him for a couple of days and possible do an upper GI later this week to see if he is having acid reflux problems.


This is the first A & B spell he has had since Saturday so hopefully this was a fluke but the OT nurse said that it was normal for premies to have reflux issues after first feeding from a bottle.


The nurse told Alaina yesterday that as long as he is tolerating his 1 bottle a day they might try to bump him to 2 a day in the near future and then in a couple of weeks all bottle feedings.


Thanks again for all the prayers and continue to do so. He is living proof of the power of prayer and is truly blessed.


Patrick

Tuesday, August 4, 2009

First Bottle!!!


Peyton got to drink out of a bottle today for the first time.

Alaina got to feed him around 8 am this morning, and he finished the whole thing (33ml). She said that it is really different than feeding a full term baby because you have to stop alot to make sure he is regulating his breathing and to make sure he keeps his tongue out of the way. He still has his feeding tube in but once a day they are going to let us feed him with the bottle.

He has been on hypoallergenic formula since he started feeeding again because there were indications in his blood work that he may be allergic to some sort of protien. His blood work yesterday showed that the new formula is helping, so they are going to keep him on it for awhile. They told us that he may outgrow the allergy so they may try to put him back on Alaina's milk before he leaves to test that theory.

He is down to 35% on his oxygen and doing well, but they turn it up during feeding time just in case he has any problems with reflux.

Yesterday afternoon they did a renal ultrasound to make sure everything was ok, this was precautionary based on the UTI, and everything is functioning like it should. They are going to have to perform a dye test later this month to recheck but they are optimistic everything looks good.

We thank everyone for their thoughts and prayers.

Patrick

Monday, August 3, 2009

Good News


Peyton now weighs 3lbs 11.3oz and is 16in long.

He had some more test run over the weekend to check for recurring UTIs and other issues that could arise form that, but so far everything has come back negative.

He got his PIC line out again this morning and they are going to let him try to drink out of a bottle for the 1st time today or tommorow. He is doing a decent job of regulating his body temperature now so he got to wear clothes for the first time last night and seemed to enjoy that, but I think Alaina liked it even more.

Alaina and I got to see him get a bath last night, and he did not enjoy the water but liked the clean feeling aftwards.

Sorry it has been awhile since we have posted anything new but Aubrey is very busy taking care of Elias, Ethan, and E3. And Alaina and I have not done a very good job of updating her to get information on here.

Continue to pray for Peyton he still has a long way to go. We are so thankful for everything everyone has done and can really see the power of all the prayers in him.

Patrick