Sorry it has been so long again since we have updated you guys. First, we hope everyone had a Merry Christmas and Happy New Year! Here are our Christmas pictures.....
Once again we have been to several doctors since the last update. First, the good news he saw the Cardiologist and the doctor does not think he has a hole in his heart. He thinks that was just something due to him being born prematurely and has cleared him until his second birthday and at that point will do another ecocardiogram to verify it is closed and then release him for good. We also saw the genetisist and endocrinologist again trying to look into the rickets more. Peyton is not deficint in vitamin D nor in Calcium therefore not consistent with rickets. He is however excreting a lot of calcium in his urine and they are affriad that eventually this could cause an issue with his Kidneys. With this in mind they have now tested him for Dents disease, which is a DNA test and we have to wait about 8 weeks to get the results back and it has now been about 4 weeks. This would explain the rickets in the bones and the calcium in the urine. They said it was like the bones telling the kidneys to get ride of a lot of the calcium. There is also another possiblity called Janson's but there is not a test for it. With either one of these there is not an exact cure, however they did say they would be able to possibly put him on medication to help from damaging the kidneys. The genetics doctor he is seeing, Dr. Lee at Texas Children's is head of the department there and over the research department as well, seems to really be good. He did not want to go into anymore detail about either disease until we got test back. As soon as we hear something there and figure out what's going on we will let you know.
Also last week Peyton went for his 6 month check up and shots. He now weights 13 pounds 9 ounces and is 23 and 1/2 inches long. The doctor said he was growing very well but still had a lot of catch up to do. Peyton is holding his head up very well and sitting up with a little assistants, he has started rolling over and smiles and laughs all the time. He is still continuing to recieve the RSV sentigen injections every month.
Thanks for all the prayers and support, please continue to keep him in your prayers and pray the doctors are wrong and the rickets issue is just due to his prematurity and he will get through this stage. We will definitly keep you updated as we get information. Again thanks and we love ya'll.
