About 3 weeks ago now we went to have xrays taken to show how his rickets was doing. It showed his rickets was very active and the pediatrician referred us to an Endocrinologist. We saw the Endocrinologist about a week ago now and she did confirm his rickets and showed me nodguels on his bones and where his joints could not absorb the calcium. The doctor put him on a new medication called calcitrol to try and get more vitamin D and Calcium in him. I did ask her if the damage was already done and she said if there was no other underlying problems then hopefully we could get this reversed. She had us go get blood work and a urine specimin done that day at Texas Children's where she is and they were great with him. We do not have the results yet however she did refer us to a genetic specialist to make sure there was nothing possible in his background that would cause rickets. We are not able to get into him until December. We will update will update you when this happens. The doctor did mention that it was possible that the TPN fluids he recieved in the NICU could cause the rickets as well however, we can not be upset with this as they were doing there job as saving his life.
Last Wednesday we saw an Early Childhood Intervention worker and Physical Therapist to evaluate Peyton's developmental progress. Things went very well, he almost scored out of the program. They are allowed to correct for him being premature up tp 2 months. He scored between a 2 and 3 month old developmentally, yea! He is less than 3 % weight and height even for a 2 month old, so needless to say he is still very small for his age but that's expected however they did say he was porportionate. The only reason he qualified for this program is because of his rickets and the possibility of needing help with that.
Yesterday we went for a recheck to the pulmonologist and everything checked out very well. Peyton finally gets to get rid of his heart and apnea monitor that he has been having to wear. We will finally get to move about our house like a normal baby not attached to anything! This is a major praise.
Next week we go to the pediatrician for his 4 month check-up, yes that's right 4 months thank you God! Also we will be seeing the pedi-surgreon as well to see if it's possible to get him circumsized yet.
Thank you for all your prayers and please continue to pray for him and us. God has done a mighty work in this little boy and on our hearts!
He is sooo cute! Praise God from whom all blessings flow!
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